Intellectual and Developmental Disabilities (IDD) are disorders that are usually present at birth and that negatively affect the trajectory of the individual’s physical, intellectual, and /or emotional development. IDD can begin at any time, up to 22 years of age. It usually lasts throughout a person’s lifetime. People who have IDD usually have problems with major life activities such as language or mobility. Many of these conditions affect multiple body parts or systems. (nichd.nih.gov;hhs.texas.gov)
Understanding IDD
The needs of children and adults with IDD can seem overwhelming.
Families of affected infants and toddlers may face exceptional challenges to simply meeting a child’s basic needs. Beyond that, they face a dizzying maze of regulations to access specialized legal and medical guidance, educational support, eligibility for services, and support through the Developmental Disabilities Administration (DDA), Medicaid, SSI, and other governmental support programs. IDD individuals may need a lifetime of care and support.
Families may want or need to establish trust funds and access resources designed to provide individualized and specialized support. They are also vocal advocates for services and supports for persons with intellectual and developmental disabilities.